Computer System and Computer-Implemented Method for Providing Personalized Health Information for Multiple Patients and Caregivers

A computer system providing personalized health information for a plurality of patients, comprising;

• a plurality of personal computer systems;
• a portal computer system;
• a computer network interconnecting the portal computer system and the plurality of personal computer systems
• wherein the portal computer system receives, over the computer network, requests for information from the plurality of personal computer systems, wherein a request may include a unique identifier for at least one of a plurality of patients;
• a database containing at least patient profiles for each of the plurality of patients, wherein each patient profile is accessible using the unique identifier associated with the corresponding patient and wherein each patient profile includes medical information for the patient;
• a personalized information generation module having an input for receiving medical information from a patient profile for a patient and an output providing personalized health information for the patient according to the received medical information from the patient profile, the personalized health information including information that is relevant to the patient and not included in the patient's medical record;
• and
• wherein the portal computer system further provides information, over the computer network, enabling at least one of the plurality of personal computer systems to access the personalized health information for a patient, in response to a request for the personalized health information that includes the unique identifier for the patient.

A method comprising:

• extracting relevant information from a medical record for a patient;
• storing the relevant information in a patient profile separate from the medical record and accessible by a user of a networked device;
• generating using the patient profile a medical summary that includes a current medical condition and current treatment plan;
• generating a survivorship plan based on the patient profile detailing at least future diagnostic procedures to monitor the current condition;
• and
• presenting the medical summary and survivorship plan to the patient in a portal in response to a request received from the user of the networked device that includes a patient identifier and authenticating information.

A method comprising:

• extracting relevant information from a medical record for a patient;
• storing the relevant information in a patient profile separate from the medical record and accessible by a user of a networked device;
• augmenting the patient profile including generating patient centric information, the patient centric information including information that is not part of the medical record, the augmenting including mapping information from the patient profile to one or more templates and evaluating the templates to determine additional information to provide to the patient that is specific to one or more of their current condition, their current treatment, their past treatment, or their expected survival;
• storing the patient centric information in association with the patient profile;
• and
• presenting at least a portion of the profile and the patient centric information to the user in a portal in response to a request received from the user of the networked device that includes a patient identifier and authenticating information.

A method comprising

• extracting information from a database, the extracted information forming a patient profile, the database maintained by an institution and including cancer registry information, the database being periodically updated with new information for both new and existing patients, the database also periodically being evaluated and used to update a local, regional, or national cancer registry not maintained by the institution;
• maintaining the patient profile separate from the database;
• generating a medical summary that includes a current medical condition and current treatment plan for a patient using the patient profile;
• and
• presenting the medical summary in a portal to a user of a networked device that has presented an identifier associated with the patient and authentication information.